A Father’s Testimony

My daughter lived 780 days (2 years and 2 months) and we often wondered after she died, if she knew Jesus.  She Did!  We know we will see her again and I hope her story will be a comfort to others who have experienced loss.  May God comfort you and bless you!

Westchester Men's Ministry - Christian Fathers

Emily was born on February 13, 2002 with Carnitine-acylcarnitine translocase (CACT) deficiency which is a genetic disorder that prevents the proper breakdown of fats.  This leads to excess ammonia in the blood (hyperammonemia), an enlarged liver (hepatomegaly), and a weakened heart muscle (cardiomyopathy).  Emily died on April 3, 2004 of cardiomyopathy.

Carolyn and Terence miss Emily very much.  We know that she lights up heaven just a little more with her presence but this world is that much dimmer without her.

God Bless!

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A Father’s Testimony by Westchester Men’s Ministry is licensed under a Creative Commons Attribution-NonCommercial-NoDerivs 3.0 Unported License.
Based on a work at


  1. tazeinmirzasaad says:

    My heart breaks for your daughter.How courageous of you to share her story, I am a mother of 3 kids, it would break me totally if I lost one of them! Your courage is very inspiring, your daughter is 100% in Heaven! God bless her and you!

  2. Maryjane Weatherstone says:

    I watched your video. I have a grandaughter with CACT. She will be 3 years old next month. I know that sometimes we feel very alone with this condition because it is so rare. Mollyjane gives us such joy. Thank you for allowing others to hear your words

    • MaryJane, thank you very much for your comment. My wife and I will keep you and MollyJane in our prayers. Please let us know if you would like to talk over the phone. We would be happy to provide encouragement and any other help we can.

      God bless!

      • Maryjane Weatherstone says:

        Would love to talk on the phone but we live in NSW Australia. Thank you for your prayers.

  3. Amy Sloss says:

    My son, Gage, was born on 7/10/2008 and also has CACT. I’m always searching online for other families and that’s how I came across this website. I’m deeply sorry for the loss of your beautiful daughter.
    Amy Sloss

    • Thank you Amy. We were so blessed to have her and we know we are going to see her again. Emily had an extreme case of CACT and had almost no detectable amount of the enzyme.

      I hope Gage is doing well.

      • Amy Sloss says:

        Gage also has a severe case of CACT. We have come close to losing him numerous times. Here is a link to a posting I did for him for Rare Disease Day- (copy & paste and it should work)



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